We are the Griffins! Jordan, Claire, and our newest addition, Max! We currently live in Chandler Arizona with our dog, Moses. We found out that we were pregnant in December of 2008. During the 17 week ultrasound we were told that our baby had a condition called CDH or a Congenital Diaphragmatic Hernia. This blog started out as Claire's personal blog, but has since transformed into the story of our walk into this new chapter of life.
Congenital diaphragmatic hernia (CDH) refers to a defect in the diaphragm that allows the abdominal organs (stomach, intestine, liver, bowel, and spleen) to migrate into the chest cavity in utero. Diaphragmatic hernia results by the failure of the diaphragm to close or to form at approximately eight weeks’ gestation. This migration of organs into the chest cavity, through the hernia, prevents the lungs from developing properly due to crowding and compression. Babies who have CDH suffer from small and underdeveloped lungs. This condition is referred to as pulmonary hypoplasia. Although hypoplastic lungs are the underlying threat to survival, the critical nature of the condition at birth is due to pulmonary hypertension or persistent pulmonary hypertension in newborns (PPHN) as a result of the underdeveloped lungs. Since this condition will be present “at birth”, it is referred to as Congenital Diaphragmatic Hernia as opposed to Diaphragmatic Hernia. CDH is known to occur in 1 out of every 3000 live births and currently has an average survival rate of 50%.
1 comments:
miss you! and this is so cute!
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