>> Monday, August 31, 2009
Synonym: able, able-bodied, active, athletic, big, capable, MAXIMUS EVAN, durable, enduring, energetic, firm, fixed, hard-as-nails, hardy, heavy duty, in fine feather, mighty, muscular, secure!!! JUST to name a few!!
Max is keeping it up. Today, he graduated "down" to the traditional ventilator, getting him off of the oscillating ventilator. Now his lungs are doing an open/close motion, rather than staying expanded and just exchanging the air. This is super great, because it's been shown that too much time on the oscillating vent can do some damage to the lungs, and we SURE don't need more of that.
Max has been on a drip of Lasix for a day and a half now, and he looks SOO much better again! I know that when he's swollen up it's not a sign of inward unrest, but when he looks bad, I feel terrible! He just looks more unhappy or uncomfortable. So when he deflates, I'm happy! Jordan took some really cute pictures of the new and improved Max from his Blackberry today...enjoy!
I just LOVE this one above...he's been sleepin' a lot the past few days. He's working hard you know! Still has socks on those hands...and a towel by his face in between him and the breathing tube...two blocking methods and he still tries to get to it. Stinker. I love when he "deflates" because I think Max has the cutest nose ever, it's a little button. (I think it looks just like his Aunt Jill...) This next picture below is from today also; you can tell he's still a bit puffy, it's obvious when you look at his eyes!
Today the nurse moved Max's head to the other side, and he really fought that. You can see above he's sort of cocked to the right still, because he spent an entire week in the exact same position! UGH I felt for him, but the ECMO can be too touchy to move the babies on it. He's doing better, so they're starting to rotate him around again. Poor guy has a sore neck I think.
Dr. Kays and Dr. Dickie (the surgeon doing her fellowship for ped's under Dr. Kays- we looove her, she's kinda his eyes and ears, and is knowledgeable and fantastic) came by today, and Dr. Kays said he's really happy with the way everything is going with Maximus so far. He has not had any setbacks ever since his "event"! No specific news really, but Max is holding strong, making steps forward, and getting stronger every day.
Max has been really alert lately (well, he's either zonked out or wide awake!) so I felt badly that he didn't have anything to look at! The nurse and I had an arts and crafts moment, and used the IV bag tags to make a little "mobile" or banner for him to look at! i think he liked it. Also! This picture is a great comparison. This is two days ago; look how HUGE his noggin is. Round like a basketball! :)
After a day with Max's ghetto mobile, we mentioned to the nurse we were going to go get him a proper one. She disappeared and came back with this!
The nurse Jen said that people donated toys all the time, and this was back there! You should have SEEN Max. His eyes bugged out! He was so into watching the planes float around. How cute! It made me regret not doing it sooner, but he's just become more interactive in his 3rd week.
Our little Max man is doing well, thank you for praying for him!!! We will keep ya'll updated!
PS, I'm pretty much 100% better as far as that lovely infection side show goes. I saw an MDLC, "Lacatation doctor" if you will, and we don't have much to do about this situation! I'm taking some really strong herbal supplements that help a bit...but this is pretty much "it". I'm not quitting until Max can try to feed, but please don't hold me to that in case I have a total meltdown over it! :)
Also, we got FREE tickets to a Gators game for Saturday night!! woo-hoo!