Breathing Tube? We Don't Need No Stinkin' Breathing Tube!!

>> Sunday, September 6, 2009

Ladies and gentlemen...Let me introduce to you...Max and his upper lip!!


That's right! Max was extubated today and he looks SO good! As you can see in the above slideshow, he did really well and is now on what is known as C-Pap. This is similar to the ventilator, but Max is now doing all of the work on his own. The C-Pap just keeps his airway open so when he takes his breaths in, it isn't as hard for him. It is also giving him a little extra oxygen!

We are seriously just praising God SO HARD for today. We have been waiting so long for this day to come, and it really could not feel better. :)

The plan is now to get Max some milk and see how his stomach will handle that. We will probably be able to start him with his feeds in the next day or so. He still has a tube going into his stomach pulling all the junk out of there. They need to get that out before they can start putting milk into it.

The nurses have told us that this is essentially the longest part of the CDH journey, but we are praying and hoping that Max can take the milk without any problems. The main issue is that most CDH babies develop acid reflux from having his organs all out of place. Some of these babies gave to have a feeding tube installed (a G-Tube) if the reflux is severe. We are really believing that Max won't have to much of an issue, but there is still a chance.

Other than Max stuff, Claire and I are SO ready to be home. We really miss our family and friends. We were very blessed last night to be given 2 tickets to the Florida Gators opening game. It wasn't really a "game" per say as the Gators CRUSHED Charlston Southern with a 62-3 win.

Ok, let me just tell Arizona something...we do NOT do football the right way!! Seriously, yesterday was SO much more than a football game. We experienced the "Gator Nation" first hand and I think that it is safe to say that we are lifelong Gators fans. Before the game, Claire and I decided that we didn't have the proper attire for the game so we went into the school store to get dressed properly. We ended up with stuff for mom, dad, AND Max!! No joke...I saw this 3 pack of Florida onesies that I just HAD to get for Max....and some UF pacifiers. Oh man...we are hooked. Here are a few pictures from yesterday:




Anyway...that was pretty much the update from yesterday and today. We couldn't be happier and more thankful. We truly are blessed and do NOT take it for granted. Thank you all for your prayers and thoughts.

Happy Labor Day weekend! Be safe and we will talk to you soon!!!

Jordan and Claire

20 comments:

Anonymous September 6, 2009 at 8:16 PM  

HE LOOKS SO GOOD! =] Yay!! I love those lips. Lady-killer..
Jaime

Helen September 6, 2009 at 8:21 PM  

1 word says it all:
HALLELUJAH!!!!!

Unknown September 6, 2009 at 8:30 PM  

It's about time you post an update! Oh and good job snaggin those tickets!

*super dude and super dog* September 6, 2009 at 8:31 PM  

Congrats! This is a huge step in the right direction. Have a wonderful holiday :)

Jillian September 6, 2009 at 8:46 PM  

i second what jaime said. he's an absolute stud. yowza!

Sarah (Thomas) Lewallen September 6, 2009 at 9:19 PM  

I cannot even BEGIN to tell you how happy I am for you two, and most of all, for Max! Someone certainly is watching out for him!

Liz Rich September 6, 2009 at 9:19 PM  

Congrats MAX!!!! CPAP looks good on you!!!!
Glad you two got to enjoy some football!
Praying for no reflux issues.
Liz, Rusty & Par (LCDH Kay's Kid '07)

Jennifer September 6, 2009 at 9:24 PM  

YAY! What awesome and exciting news and wonderful pictures to go with the story! So glad things are going well and it looks like they will continue that way. Prayers and thoughts come to you three daily and we hope for a safe and quick recovery for sweet little Max! :)

Mary Jane September 6, 2009 at 10:02 PM  

Wow God is awesome I love his lips he is adorable and Claire I think he has your feet, I don't know I haven't seen Jordans. Oh and Dr. Kays talent is awesome tooo! Woo Hooo! Way cool!

Michelle Harris September 6, 2009 at 11:51 PM  

He's so adorable, you guys have an absolutely amazing little guy there. Will keep on praying for him and you guys, but definitely doing some praising tonight!!

Anonymous September 7, 2009 at 5:16 AM  

God bless you both,and that beautiful little fella! Praying for a smooth road for you all from here, and a trip home in the very near future! Come on Max, keep up the good work! Congratulations and best wishes to you and your family!!

Shari September 7, 2009 at 6:12 AM  

Such great news and wonderful pictures. Max is adorable.

Glad you got the football "experience". I had University of Michigan tickets for years and few compare to a Saturday at the Big House. My son-in-law will be so envious. He is a HUGE gator fan.

Home will be so sweet when you're finally back. Enjoy each day until then.

Christmas with Kasey September 7, 2009 at 6:46 AM  

Yeah!! You are awesome Max!!

Unknown September 7, 2009 at 7:11 AM  

YAAYYY!!! So glad he got rid of that stinking tube!!! He looks GREAT! I'm so happy for you guys!! Glad you enjoyed the game and that you have become proud members of the Gator Nation. :)

Becca September 7, 2009 at 9:41 AM  

I am soooo happy for you guys. Max is so adorable! God is so amazing!

The Gault Family September 7, 2009 at 12:45 PM  

Woohoo God is GREAT!! Max is so cute! I love his lips:) We will be praying for successful feedings!:)

Ryan Bailey September 7, 2009 at 6:21 PM  

Hey Guys! We are so stinking excited! Max is Amazingly beautiful!!! God is truly good! We love you guys and are going to continue to pray!

Love
Chad & Ryan

Lisa September 7, 2009 at 6:30 PM  

Yippee!!!! What an awesome step forward! I can't wait to see him on Thursday. Jammin seats for the game, BTW.

martha September 7, 2009 at 6:31 PM  

YEAH!!! His lips are so cute!! I'm sure he's glad that he can see his dad's upper lip now, too!! :) I'm praising God for all good things!! So glad you got to experience a UF football game....hard to imagine it without being there, huh?? Go Gators!

Kim Dodridge September 7, 2009 at 8:20 PM  

Oh my goodness, he is SO adorable!! What great progress. God is so awesome and so good! I will pray that he "learns" to eat and does it quickly without tummy issues. I'm sure you are more than ready to be home. I bet he is ready to be in his own comfortable bed without all of those interruptions throughout the night (although he's probably oblivious to them). So happy for you!!!

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