Ain't Nobody Got Swagga Like Max!
>> Tuesday, September 1, 2009
Swagga like Max...swagga, swagga like Max!!
We are cautiously celebrating little victories tonight and one big one right now. We have had a really good day with our King of the Wild Things. This is how it went:
Claire and I have been sleeping in too long lately, and we tried to get up on time to get over to our little man as soon as we could...Being that today is 5 years that Claire and I have been together, I decided to get my bride the PERFECT breakfast...Dunkin Donuts and coffee.
We got to the hospital and went upstairs to see one of our favorite nurses (Tony) working with Max today. We were a little bit nervous to find out what had happened because last night Max suffered from an SVT. This is basically when his heart sped up really quickly and it was giving the nurses trouble. His pulse was over 200 for 40+ minutes and even got into the 300s for a bit. His nurse, Gloria, was able to get him the drugs he needed to get the pulse back down to where it should be. We weren't really sure what had happened until Tony explained everything to us, so we were nervous that we would find out somthing happened that we were not ready for.
Well, we were in for some news, but it was not the bad kind! :) The nurses had been pulling his blood gasses all night and his CO2 and O2 were both doing EXTREMELY well. Tony decided that he wanted to try and have Max rest on the other side again, and you could tell that his little neck was sore from looking in the same direction for so long. Claire stood at his side for over 45 minutes holding him still so he would calm down. If she didn't there was a chance that he would pull his breathing tube out. Nooooo good. Once Max fell asleep, we decided to leave for a bit and let him get some rest.
We have made some good friends here, but we really have bonded with a couple that Claire had met before I got here. We went over to Lauren and Tyler Brodericks house for dinner and a game night. We had a great time, but it was soon time to go back and see how Max was doing and see if there was any new news. Well, we were sure surprised when we got in and our nurse for the night (Jen) told us that "Word on the street is...Max should come off of ECMO tomorrow."
WHAT!?!? I really cannot put into words how thrilled and blessed this makes Claire and I feel!!! We don't want to get our hopes up ("the event" proved this to us), but we really feel like we can get rid of this big machine tapped into our baby! So yes...God is SO good. You all have been SO wonderful. We cannot thank you enough for all of your prayers and comments. I hopefully will have the greatest news yet to share with you tomorrow so until then, I will continue to sing:
Ain't nobody got swagga like Max!!!
14 comments:
Wow! What happens after that, can you hold him then or is he still going to be on a vent? Let us know as soon as you know that they're going to take him off. Did they determine it was the ecmo tube causing the svt? Ge'ez, sorry, I guess I'm playing 20 questions tonight. Anyway, GO MIRACLE-MAXI- PANTS- WILD- THING- STINKY- BUTT- GO!
Great news! We'll be checking in to see how the trial off goes. I'm also glad to read that you are getting out of the hospital and taking care of yourselves--it's so important.
Happy 5 years together :)
awesome!!!! we'll be praying for mister max and his big day tomorrow. he is such a little ninja baby!
Awesome news! Will be praying that tomorrow the news is even awesomer! Kick some CDH butt there Max-Man!
Happy 5 years together!!!
We are so thrilled to hear the good news! We'll be anxiously awaiting the news on how the trial off ECMO goes!!
Let us know if y'all need anything! Until then we'll praying......
Yay! I am so excited! Good luck with getting off ECMO! It sounds like it is going to go great!
We LOVE Tony too!!! He was one of our favorite nurses because he explained everything in such a clear way and always made us feel so much better!!!!
Praying for continued good progress!
Love,
Jennifer
Mom to Dakota 12-25-2008
RCDH survivor
Dr. Kays/Shands alumnae
For those who dont know SVT is a condition where your heart does not know to stop beating. Usually there is a secondary electrical circuit in the heart which allows the heart to either beat the wrong way (a friend of mine had this) or goes crazy and just keeps amplifying the right beat circuit and just beats to very high numbers (Michele had this). The cool thing is that is infrequently life threatening, but it hurts like hell when "events" happen. The cool thing is they are able to do a closed major vein catheter procedure burn the bad circuit (which they find by testing different electrical paths in the heart) and then it goes away. M had this and it has been awesome not having these events any more. Simple procedure, in and out in 1/2 a day. M was actually awake for it and got to participate in the procedure. Very cool stuff.
well first off happy 5 years together!! :)
im so happy for you guys! little Max is kicking butt! cant wait to hear the good news tomorrow!!
Happy anniversary! :)
Yeah! I hope his trials off go well! Happy Anniversary!
Yay! Happy anniversary :)
Go Maxi-man, Go!
Jordan and Claire - sleep in now soon. Maxi-man will be home soon and then NO SLEEP for you two.
Melissa
Happy Anniversary!! Coming off ECMO would be the perfect gift, huh? Pray that ya'll get some really great news tomorrow!! I've been thinking and praying for ya'll....Suzanne is going to bring a little gift up to Annie, for you....:)
Happy Anniversary!! Coming off ECMO would be the perfect gift, huh? Pray that ya'll get some really great news tomorrow!! I've been thinking and praying for ya'll....Suzanne is going to bring a little gift up to Annie, for you....:)
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